You can support the SMA Disease Fighting Association on the HelpSteps common sense campaigns page by donating your steps.
Rare Diseases Network has met with black pearls; we are taking firm steps towards drawing a healthy road map for the future.
Disabled Child Rights Network Ankara meeting and EÇHA's youngest rights advocate Çağan Meriç.
Rare Diseases Network continues the preparatory work for the event to be held within the scope of February 28 Rare Diseases Day.
We held an SMA disease awareness event and a photo exhibition at Eskisehir ESPARK Shopping Center on 12-14 June 2018.
SMA-DER Executive Board Chairman Ali SOYER and Vice President Ece SOYER DEMİR participated in the program "Haberiniz Olsun" broadcast on Channel 26.
Painter Mothers organized a painting exhibition of their works to benefit SMA patients and draw attention to SMA disease.