SMA Family Information Book

SMA Family Information Book was published in 2021 by Prof. Dr. It was prepared under the editorship of Kürşat Bora Çarman.

Our book, which was prepared as the first Turkish resource by dealing with SMA disease in all its aspects, aims to improve the quality of life of patients by providing information about the disease, correct care and current developments. Although the drug treatments developed in recent years for SMA disease are promising and very important, it is very important to have information about the general health conditions, nutrition, swallowing, lung functions, vaccines and physiotherapy principles of the patients.

In the book prepared as a guide so that the newly diagnosed families can have up-to-date and scientific information about the disease; You can have it for free by filling out the form on the link below.

https://docs.google.com/forms/d/1uVMgn_biGjdlZr3wQr67DWol-oxC3ay3lDmRlowOaAg/edit