The foundations of Turkey SMA Foundation; In order to increase the awareness of SMA (Spinal Muscular Atrophy) in the society, to carry out advocacy activities to contribute to the legal regulation in treatment, to support the free access of patients and their relatives to treatment, education and social rights; The volunteers who came together in It was launched with the Association for Combating SMA Disease, founded by a team.
Our association, which was established in 2017 with the need for a civil society movement in the process of approval in our country of the first drug that can reduce the devastating effects of SMA disease, which has a severe clinical and incurable disease, aims to provide ‘fair and accessible treatment for every patient’ ; He has done a lot of work with his principle.
Since our establishment, as an association, we have created an effective solidarity network in the organization of the disabled, in order for SMA patients to benefit from their rights in health, education and social areas at the maximum level.
As a rights-based and non-profit non-governmental organization, our focus is; It has been to produce solutions in every field covering the needs of patients and their families, from awareness and advocacy activities to treatment and medical device support, from educational scholarships to basic needs. As
Association for Combating SMA Disease, we are on the path we have taken today; We are a big family with our employees, supporters and volunteers. Stronger involvement in the active participation of more SMA patients in life. We continue on our way as the TURKEY SMA FOUNDATION, which we established on 26.07.2022 to provide support.
TURKEY SMA FOUNDATION is also a national and international organization, including Treat NMD, Eurordis, Turkish Philanthropy Funds (TPF), European Alliance of Neuromuscular Disorders Associations (EAMDA) Adım Adım, Open Open, Rare Diseases Network. is a member of civil society platforms.