I AM AWARE OF SMA

With I Am Aware of SMA Project, it is aimed to reveal misunderstandings and misconceptions about the disease together with current treatments, and aims to provide accurate information about SMA to all segments of the society. In this context, two Needs Analysis Workshops were held with our adult and pediatric patients. The patients were asked to describe the problems they face in social life, health and education and to share the solutions they bring with us.