KVKK Lighting Text for To Donated Persons

Data Controller

In accordance with the Personal Data Protection Law No. 6698 (KVKK), “Turkey SMA Foundation” "Donated Person (Patient, Patient's Relative/Representative)" by Some of your personal data are processed. Article 10 of the KVKK and the Communiqué on the Procedures and Principles to be Followed in Fulfilling the Obligation of Lighting. The Clarification Text prepared in accordance with the law has been submitted to the information of the relevant persons.

PERSONAL DATA PROCESSED

• Identity data (Patient's name and surname, Name and surname of the relative / representative applying on behalf of the patient, Date of birth of the patient, Name and surname of the person who will receive the cargo)
• Contact data (phone number, address where the cargo will be delivered, city/province of residence)
• Social analysis data (total number of people living in the household, number of SMA patients living in the household, number of other disabled people living in the household, social security, housing status (own/rent), total monthly income in the household
• Health data (Type of Spinal Muscular Atrophy, Patient's Diagnostic Report)

PURPOSE OF PROCESSING PERSONAL DATA

Personal data are processed for the purposes listed below:

1. a) Fulfilling the activities of the Foundation,
2. b) Carrying out communication activities,
3. c) Organizing donation activities,

ç) Status determination of the person to be donated,

1. d) Providing information to authorized persons, institutions and organizations

LEGAL REASON FOR PROCESSING PERSONAL DATA

These personal data are subject to the 2nd paragraph of Article 5 of the Law No. 6698;

• (c) clause (it is necessary to process the personal data of the parties to the contract, provided that it is directly related to the establishment or performance of a contract);
• (e) clause (data processing is mandatory for the establishment, exercise or protection of a right)
• (f) clause (obligation of data processing for the legitimate interests of the data controller, provided that it does not harm the fundamental rights and freedoms of the data subject)

It is processed based on legal reasons.

Health information and genetic data from special quality personal data are processed in case of express consent in line with the 2nd paragraph of Article 6 of the Law No. 6698 .

METHOD OF COLLECTION OF PERSONAL DATA

This personal data is processed partially automatically or automatically, or non-automatically, provided that it is part of a data recording system, based on the above-mentioned legal reasons, through forms, computers or software used within the foundation.

TRANSFER OF PERSONAL DATA

All these personal data are collected from the relevant public institutions, the Association for the Fight Against SMA Disease, one of the founders of our foundation and operating for the same purpose, the foundation's lawyers, financial advisors and independent auditors. ;advanced and upon request, except for judicial authorities and authorized public institutions Third; It is not shared with people. None of the said personal data is transferred abroad.

STORING, DELETING AND DESTROYING PERSONAL DATA

All processed personal data are kept by taking administrative and technical measures in accordance with the provisions of the KVKK. Personal data of patients, their relatives/representatives will be kept for 10 years. At the end of the relevant period, personal data will be deleted in accordance with our retention, destruction and destruction procedure.

RIGHTS OF THE RELATED PERSON

The law that "regulates the rights of the person concerned" Regarding himself/herself by applying to the data controller within the scope of Article 11;

1. a) Learning whether personal data is processed or not,
2. b) If personal data has been processed, requesting information about it,
3. c) To learn the purpose of processing personal data and whether they are used in accordance with its purpose,

ç) Third, to which personal data is transferred in Turkey or abroad; know people,

1. d) Requesting correction of personal data if it is incomplete or incorrectly processed,
2. e) Requesting the deletion or destruction of personal data in accordance with the conditions specified in Article 7 of the Law,
3. f), the transactions made pursuant to subparagraphs (d) and (e) are the third; requesting people to be notified,
4. g) Objecting to the emergence of a result against you by analyzing the processed personal data exclusively through automated systems,

ğ) To request the compensation of the damage in case of loss due to the unlawful processing of personal data,

She has the rights.

“According to the Communiqué on the Procedures and Principles of Application to the Data Controller”;

• Relevant persons must forward these requests in Turkish.
• Requests must be submitted in writing or by using the e-mail address previously notified to the data controller by the data controller and registered in the data controller's system.
• Applications must contain the mandatory elements listed in paragraph 2 of Article 5 of the aforementioned communiqué. Otherwise, the applications will not be evaluated.

DATA SPEAKER CONTACT INFORMATION

Address for Written Application    : Batikent Mah. Geven Sok. No: 5 B Tepebasi/ Eskisehir

E-Mail            &nb

1. a) Fulfilling the activities of the Foundation,
2. b) Carrying out communication activities,
3. c) Organizing donation activities,

ç) Status determination of the person to be donated,

1. d) Providing information to authorized persons, institutions and organizations

LEGAL REASON FOR PROCESSING PERSONAL DATA

These personal data are subject to the 2nd paragraph of Article 5 of the Law No. 6698;

• (c) clause (it is necessary to process the personal data of the parties to the contract, provided that it is directly related to the establishment or performance of a contract);
• (e) clause (data processing is mandatory for the establishment, exercise or protection of a right)
• (f) clause (obligation of data processing for the legitimate interests of the data controller, provided that it does not harm the fundamental rights and freedoms of the data subject)

It is processed based on legal reasons.

Health information and genetic data from special quality personal data are processed in case of express consent in line with the 2nd paragraph of Article 6 of the Law No. 6698 .

METHOD OF COLLECTION OF PERSONAL DATA

This personal data is processed partially automatically or automatically, or non-automatically, provided that it is part of a data recording system, based on the above-mentioned legal reasons, through forms, computers or software used within the foundation.

TRANSFER OF PERSONAL DATA

All these personal data are collected from the relevant public institutions, the Association for the Fight Against SMA Disease, one of the founders of our foundation and operating for the same purpose, the foundation's lawyers, financial advisors and independent auditors. ;advanced and upon request, except for judicial authorities and authorized public institutions Third; It is not shared with people. None of the said personal data is transferred abroad.

STORING, DELETING AND DESTROYING PERSONAL DATA

All processed personal data are kept by taking administrative and technical measures in accordance with the provisions of the KVKK. Personal data of patients, their relatives/representatives will be kept for 10 years. At the end of the relevant period, personal data will be deleted in accordance with our retention, destruction and destruction procedure.

RIGHTS OF THE RELATED PERSON

The law that "regulates the rights of the person concerned" Regarding himself/herself by applying to the data controller within the scope of Article 11;

1. a) Learning whether personal data is processed or not,
2. b) If personal data has been processed, requesting information about it,
3. c) To learn the purpose of processing personal data and whether they are used in accordance with its purpose,

ç) Third, to which personal data is transferred in Turkey or abroad; know people,

1. d) Requesting correction of personal data if it is incomplete or incorrectly processed,
2. e) Requesting the deletion or destruction of personal data in accordance with the conditions specified in Article 7 of the Law,
3. f), the transactions made pursuant to subparagraphs (d) and (e) are the third; requesting people to be notified,
4. g) Objecting to the emergence of a result against you by analyzing the processed personal data exclusively through automated systems,

ğ) To request the compensation of the damage in case of loss due to the unlawful processing of personal data,

She has the rights.

“According to the Communiqué on the Procedures and Principles of Application to the Data Controller”;

• Relevant persons must forward these requests in Turkish.
• Requests must be submitted in writing or by using the e-mail address previously notified to the data controller by the data controller and registered in the data controller's system.
• Applications must contain the mandatory elements listed in paragraph 2 of Article 5 of the aforementioned communiqué. Otherwise, the applications will not be evaluated.

DATA SPEAKER CONTACT INFORMATION

Address for Written Application    : Batikent Mah. Geven Sok. No: 5 B Tepebasi/ Eskisehir

E-Mail            &nb