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Visit / Meetings

ALS, SMA, DMD, MS and Rare Diseases Research Commission Meeting

ALS, SMA, DMD, MS and Rare Diseases Research Commission Meeting

Visit / Meetings

ALS, SMA, DMD, MS and Rare Diseases Research Commission Meeting

SMA AWARENESS ACTIVITY FOR HEALTHCARE WORKERS

SMA AWARENESS ACTIVITY 2 FOR HEALTHCARE WORKERS

OUR MEETING WITH SSI PRESIDENT, İSMAİL YILMAZ ABOUT CURRENT DEVELOPMENTS

AWARE OF SMA ONLINE PROJECT MEETING WAS HELD.

I AM AWARE OF SMA PROJECT OPENING MEETING

VICE CHAIRMAN OF THE BOARD OF DIRECTORS ECE SOYER DEMİR IS THE GUEST OF THE THIS TIME FOR SMA PROJECT MEETING

We participated in the meeting of the SMA, ALS, DMD, MS and Rare Diseases Research Commission established in the Turkish Grand National Assembly on June 26, 2019, as Rare Diseases Association. We raised the issues faced by our "black pearls" (diseases) and their families, and presented our proposed solutions.