24.04.2020
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We will participate in the event organized by the Ministry of Health as Rare Diseases Network on Rare Diseases Day in 2020. With the section opened for us, it is of course our desire to be together with those who work and struggle and to take permanent steps. 

Although we cannot give much support to universities and hospitals this year, one or two events planned before will be supported by our founders. 

With the wish of a healthy life path that not even one black pearl is not left behind and that we can walk together. 

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