Insight with Experts on SMA Awareness and Needs We Held the Meeting
Since the day we set out with the principle of equal and fair treatment for every patient, we have been meeting the needs of SMA patients and their families. Volunteer work from subject matter experts as they produce solutions in every field they hear about and implement these solutions. The contribution of their support was very valuable. One of our primary areas of work is to support patients and their relatives with scientifically based information so that they can carry out the process more consciously in SMA treatment. We came together with health professionals and experts from different fields who are at a critical point in the process. The insight we have prepared within the scope of SMA awareness and needs. to our meeting; 43 people from the fields of Pediatric Neurology, Physiotherapy, Pediatric Intensive Care, Pediatric Infectious Diseases, Social Pediatrics, Pediatric Surgery, Oral and Dental Health, Medical Genetics, Internal Medicine, Nutrition-Dietetics, Family Medicine, Social Work, Psychology, Law and Informatics attended. In other words, all volunteers who shared their opinions and suggestions that will guide us in our work during the term. We thank our participants.