PRESIDENT OF SOCIAL SECURITY INSTITUTION, DR. WE VISITED RACI KAYA IN HIS OFFICE.

Our institutional meetings to share the urgent problems of SMA patients and their relatives and our suggestions continue. In this context, the President of the Social Security Institution, Dr. We visited Raci Kaya in his office.

On behalf of our foundation, our Chairman of the Board of Directors Ali Soyer, Deputy Chairman of the Board of Directors Ece Soyer Demir and our Board member Mehmet Demir attended the meeting. We shared our demands and suggestions for making EMA and FDA approved treatments available to patients who meet the criteria, taking into account scientific data, and for the retirement rights of women who care for severely disabled people. In addition, our foundation carries out We presented information about the studies.

Dear Dr. for his kind hosting and attention. Thank you to Raci Kaya.