Türkiye RARE DISEASES CURRENT SITUATION AND NEEDS ANALYSIS SURVEY

T.R. "Evaluation of direct experiences of people with rare diseases and their relatives regarding the difficulties they experience in diagnosis, treatment and receipt of health services" included in the Rare Diseases Health Strategy Document and Action Plan of the Ministry of Health. In order to achieve this goal, a survey has been prepared to determine the current situation and needs of individuals with rare diseases and their families in Turkey.

The answers given by individuals with rare diseases or their relatives will help to understand the current situation of rare diseases in our country and It will make a great contribution to determining the needs in this field. 

For the survey Please click.