05.09.2024
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As the Turkish SMA Foundation, the 3rd National SMA Camp, which we organized between 22-25 August, has been completed. The first day of the camp, where we brought together SMA patients and their families with experts in a comprehensive program. Deputy Governor Mr. Dr. Hasan Çicek, Eskişehir Provincial Health Director; Dear Assoc. Dr. Yaşar Doğruci and Eskişehir Osmangazi University Faculty of Education Dean Prof. Dr. It started with the participation of Şerife Yücesoy and Özkan. It continued with the opening speech of Ali Soyer, Chairman of the Board of Directors of our Foundation.

Prof. Dr. Kürşat Bora Arman, with his presentation titled "Multi-Faceted View of SMA Disease"; Dr. Ögr. Member Azize Reda Tunç He informed our families and guests with his presentation titled "Physical Therapy Applications in SMA Disease". SMA Europe Operations Manager, who participated from abroad; Theodoros Soultanos made his presentation titled "SMA Europe" and talked about the activities carried out in Europe and possible collaborations.

In the simultaneous Youth session, our foundation's Patient Relations Department Coordinator Çiğdem Çit talked about the activities of our foundation in her presentation titled "Turkish SMA Foundation". Then, Strategic Planning Consultants Gözde Kaymaz, Zerrin Simer and Özge Kantarcı met with the young team. We spent the day with our patients and their relatives in the sessions "Introduction to Civil Society 101-We Talk About Youth" and "Thinking on the SMA Journey-Project Design". They completed it.

In activities for children, Turkey SMA Foundation Volunteer; Coordinator Jale Serin Basım made her presentations about our foundation. Afterwards, Mehlika Yazgıç Our children had a pleasant time with both fun and supportive activities with "Interactive Story Time" and Filiz Çankaya Uzun's "My Guest Puppet" workshops.

With SMA We would like to thank all our valuable experts who contributed to our struggle with their knowledge, experience and expertise.