THE 3RD NATIONAL SMA CAMP, WHICH WE ORGANIZED BETWEEN 22-25 AUGUST, HAS BEEN COMPLETED.

As the Turkish SMA Foundation, we organized the third National SMA Camp between 22-25 August. On the day, our foundation's Legal Advisor Atty. Dr. Ahmet Haşim Alagüney's "Our Social Rights in SMA Disease" message for our families. It started with his presentation. Trainings, Prof. Dr. ‘Infectious Diseases in SMA Disease’ by ‘mer Kılı’ and Assoc. Dr. Ahmet Cevdet Ceylan's "SMA Genetics and PGT" continued with his presentations. Deputy Chairman of the Board of Directors of the Turkish SMA Foundation, Ece Soyer Demir, said to our families that the ‘Turkish SMA Foundation’ While explaining the foundation's activities with his presentation, Turkey SMA Foundation Board Member Kerem Olkun's "Inspiring Stories" The day ended with the presentation.

The youth session was followed by Social Services Specialist Ayşe Sarı's "Self-Defense Training for Young People". Starting with and continuing with the "Youth Workshop" organized by Strategic Planning Consultants Gözde Kaymaz, Zerrin Simer and Özge Kantarcı. continued with. Christian Mori from the Italian Famiglie SMA Association answered the questions of young people by talking about the studies carried out in Italy, translated by Aykut Yüceüvar. Ceren Pekoğlu's "Right to Independent Life" The youth sessions were completed with the presentation.

In our children's hall, there was a "Papuduk Workshop" with the participation of Lider Hepgen, Tolga Öztorun and Sıla Levent from Sabancı Foundation. It was carried out. After this enjoyable workshop, Strategic Planning Consultants Gözde Kaymaz, Zerrin Simer and Özge Kantarcı talked about "Living with SMA". They organized a children's workshop. The day ended with fun and supportive activities for our children.

We would like to thank all our valuable experts who contributed to our fight against SMA with their knowledge, experience and expertise.