MINISTRY OF HEALTH, AUTISM, SPECIAL NEEDS AND RARE DISEASES DEPARTMENT HEAD, EXPERT. DR. MURAT GÜLŞEN AND HEAD OF INSPECTION AND DIAGNOSTIC SERVICES DEPARTMENT, DR. WE VISITED İBRAHİM KARAKUŞ.

Our institutional meetings, which we hold in order to convey the problems and suggestions of SMA patients and their relatives, continue. In this context, the Head of Autism, Mental Special Needs and Rare Diseases Department of the Ministry of Health, Specialist. Dr. Murat Gülşen and Head of Examination and Diagnostic Services Department, Dr. We visited İbrahim Karakuş.

On behalf of our foundation, our Deputy Chairman of the Board of Directors Ece Soyer Demir, our Board Member Mehmet Demir and Corporate Communication Specialist Can Akgün attended In the meeting; We forwarded the questions from our patients on issues such as how the reimbursement process will proceed, which patients can benefit from the treatment, and the distribution model regarding Evrysdi treatment with the active ingredient Risdiplam, for which the licensing process was recently completed. Mr. Gülşen; He stated that post-licensing work is continuing, will be completed as soon as possible and relevant institutions will share information. Subsequently, we expressed our demands and ideas on increasing the number of PGT application centers and expanding home physical therapy services.

Finally, Head of the Examination and Diagnostic Services Department, Mr. We visited İbrahim Karakuş and conveyed our request to increase the number of centers where PGT (Preimplantation Genetic Diagnosis) is performed, which allows carrier couples to have healthy babies. Mr. Karakuş informed that after Ankara Bilkent City Hospital, preparations have been started to open centers in Istanbul and Izmir.

Mr. Specialist for his kind hosting and attention. Dr. Murat Gülşen, his valuable team and Dear Dr. We would like to thank İbrahim Karakuş.