AS Türkiye SMA FOUNDATION, WE DRAW ATTENTION TO RARE DISEASES DAY

As the Turkish SMA Foundation, we paid attention to the Rare Diseases Day

28 February Rare Diseases Day. in the scope of; We participated in events organized by different institutions and organizations in Eskişehir, Ankara and Istanbul in order to contribute to raising awareness in society on this issue and to draw attention to the difficulties faced by individuals living with rare diseases. We also had the opportunity to explain rare diseases to a wide audience through the stands we set up.

Istanbul Metropolitan Municipality event, awareness presentations at Eskişehir City College, Ankara Doğa College, Eskişehir Private Basari Anatolian High School, Eskişehir Osmangazi University, Health, Application and Research Hospital. We reached different segments of the society about rare diseases and the unknowns of SMA, which is in this category, by setting up information stands at the Faculty of Education and Education. Thanks to the interactive presentations, we shared the obstacles in education, health and social life of individuals living with rare diseases and the solution suggestions to overcome these obstacles.

28 February Rare Diseases Day, European Rare Diseases ÖOrganizationü Global awareness day by (EURORDIS). It is accepted as. Approximately 5 million individuals in our country live with rare diseases. When the families and immediate surroundings of these individuals are evaluated, the number of affected people has almost doubled, increasing the importance of raising awareness about the issue. As the Turkish SMA Foundation, with the strength we receive from the Rare Diseases National Action Plan, we will continue our work to increase the level of awareness in society in this field.