27.11.2025
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Life with SMA, a rare disease, is not only medical; It requires access to information in many areas such as care, education, social rights and psychological support.

We are launching our Expert & Family Program in order to make information accessible to everyone and to ensure that families reach the right resource.

This program includes experts in their fields. We aim to implement it in 7 regions of Turkey.

In the program we started with the hope that you can access the most up-to-date information, experiences and support about SMA disease, we learn as we share and learn together. We are getting stronger.