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RAMADAN SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

12.04.2021

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ANNOUNCEMENTS

HEALTH MINISTER FAHRETTIN KOCA ANNOUNCED THAT THE PRE-MARITAL SMA SCREENING STARTED TODAY

HYGIENE SUPPORT PACKAGE REQUEST FORM

SUPPORT FOR PRE-MARITAL SCREENING FROM FAMILIES STRUGGLING WITH SMA

HAPPY WORLD VOLUNTEERS DAY ON DECEMBER 5

DECEMBER 3 IS WORLD DAY OF DISABLED PEOPLE

Health Minister Fahrettin Koca made the announcement after a meeting of the SMA ...

MAY YOUR GIFT TURN INTO A FAVOR FOR SMA PATIENTS WITH OUR NEW YEAR CERTIFICATES

Minister of Health Fahrettin Koca's Statements about SMA Disease in the Parliament's Plan ...

NOVEMBER 24, TEACHER'S DAY

CHARGED ASPIRATION DEVICE REQUEST FORM

LET YOUR TEACHER'S DAY GIFT TURN INTO A FAVOR WITH OUR CERTIFICATE DONATIONS

WE COMMEMORATE THE GREAT LEADER GAZI MUSTAFA KEMAL ATATÜRK WITH RESPECT

PULSE OXIMETER ASSISTANCE APPLICATION FORM

HAPPY REPUBLIC DAY!

GIFT OF CLOTHES APPLICATION FORM

THE SEPTEMBER E-BULLETIN OF THE SOCIETY FOR THE FIGHT AGAINST SMA DISEASE IS ON THE AIR

THE MINISTRY OF HEALTH WILL PROVIDE FREE SMA SCREENING TO MARRIED COUPLES

ANNOUNCEMENT ABOUT THE TREATMENTS OF SMA PATIENTS

OUR ELECTRICITY BILL SUPPORT FOR SMA PATIENTS CONNECTED TO A RESPIRATOR HAS STARTED

HAPPY WORLD PHYSIOTHERAPISTS DAY ON SEPTEMBER 8

The Covid-19 virus that has entered our lives affects the world; individuals with chronic ...

AUGUST E-NEWSLETTER IS PUBLISHED

HAPPY 30 AUGUST VICTORY DAY !

OUR STATIONERY GIFTS ARE ON THEIR WAY TO BE DELIVERED TO STUDENTS SUFFERING FROM SMA

An online meeting was organized with the participation of project partners within the ...

STATIONERY GIFT APPLICATION FORM

DISASTER AND EMERGENCY PREPARATORY SURVEY

SMA AWARENESS MONTH

THE PGD METHOD WAS COVERED BY THE SGK REFUND

WE CONVEY OUR BEST WISHES

CORONAVIRUS HYGIENE SUPPORT PACKAGE REQUEST FORM

OUR MARKET CARDS ARE READY BEFORE EID AL-ADHA

LET YOUR SACRIFICE DONATIONS COME TO SMA PATIENTS!

HAPPY FATHER’S DAY!

HOW CAN I ACCESS THE SMA INFORMATION GUIDE FOR FAMILIES?

SMA INFORMATION GUIDE FOR FAMILIES PUBLISHED

WHAT’S IN THE SMA INFORMATION GUIDE FOR FAMILIES?

SMA INFORMATION GUIDE FOR FAMILIES WILL BE SOON PUBLISHED

HAPPY MAY 19th COMMEMORATION OF ATATÜRK AND NATIONAL YOUTH AND SPORTS DAY

HAPPY RAMADAN HOLIDAYS!

HAPPY NURSES DAY!

HAPPY MOTHER’S DAY!

ONLINE SMA MEETING

HAPPY LABOUR DAY!

LET YOUR MOTHER'S DAY GIFT GIVE HOPE TO SMA PATIENTS

OUR RAMADAN SUPPORT PACKAGES ARE READY

ONLINE SMA CHILDREN'S MEETING

ONLINE SMA CHILDREN'S MEETING

APPLICATION DEADLINE FOR ONLINE SMA MEETING IS APRIL 18

THE DURATION OF DISABLED REPORTS EXTENDED

23 APRIL NATIONAL SOVEREIGNTY AND CHILDREN'S DAY

"I AM AWARE OF SMA" PROJECT WORK CONTINUES WITH 'SMA NEEDS ANALYSIS MEETING

"I AM AWARE OF SMA" PROJECT WORK CONTINUES WITH 'ONLINE CHILDREN'S MEETING'

RAMADAN SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

7 APRIL, WORLD HEALTH DAY

LET YOUR RAMADAN DONATIONS COME TO SMA PATIENTS!

RISDIPLAM APPROVED BY EMA

OUR RAMADAN SUPPORT PACKAGES ARE READY

SMA PATIENTS OVER 18 YEARS ARE AMONG THE PRIORITY GROUPS FOR COVID-19 VACCINATION

THE NUMBER OF SMA NUSINERSEN SODIUM APPLICATION CENTERS INCREASED

ONLINE MEETING OF ASSOCIATIONS

OUR HOSPITAL COTS AND BED AIDS ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

Disability health board reports and information about special needs report for ...

FREE INDIVIDUAL NUTRITION COUNSELING FOR SMA PATIENTS

HAPPY MARCH 14 MEDICAL DAY TO ALL HEALTH WORKERS

HOSPITAL COT REQUEST FORM

CHARGED ASPIRATION DEVICE REQUEST FORM

In the meeting a presentation about the general characteristics of devices that are used ...

HEALTH EXPENDITURES MADE BY FAMILIES WITH RARE DISEASES

HAPPY 8 MARCH INTERNATIONAL WOMEN'S DAY

With 8 March International Women's Day certificates, you can contribute to the medical ...

RARE DISEASES DAY ONLINE PRESS CONFERENCE

A protocol was signed between Ankara Metropolitan Municipality and Başkent University for ...

OUR DIAPER SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

CALL FOR ORDINARY GENERAL ASSEMBLY MEETING

The meeting meeting with the local stakeholders of our Erasmus + project called "Let's ...

PATIENT DIAPER SUPPORT PACK REQUEST FORM

OUR CHARGED ASPIRATION DEVICE SUPPORT PACKAGES ARE ON THE ROAD TO DELIVER OUR PATIENTS

Our Vice Chairman of the Board of Directors, Ece Soyer Demir; He is the guest of This ...

SMA FIGHTING ASSOCIATION IS NOW IN TRENDYOL

Awareness in solution conference was held with Acıbadem University Engineering ...

CHARGED ASPIRATION DEVICE REQUEST FORM

Ece Soyer Demir, Vice Chairman of the Board of SMA-DER; SMA Disease is the guest of ...

ONLINE BROADCAST ON 'LIVING WITH SMA' WITH MURADİYE ROTARY CLUB

ZOLGENSMA TITCK IS ADDED TO THE ABROAD DRUG LIST

ASPIRATION PROBE SUPPORT PACK REQUEST FORM-ASPİRASYON SONDASI

LIVE BROADCAST ON 'LIVE WITH SMA' WITH ŞİŞLİ ROTARACT CLUB

OUR CORONAVIRUS HYGIENE SUPPORT PACKAGES ARE ON THE ROAD TO REACH OUR PATIENTS

In the new year, choose our "New Year Donation Certificate" for your loved ones, and your ...

SMA IS A PREVENTABLE DISEASE

THE SIGNATURE CAMPAIGN THAT WE LAUNCHED ON CHANGE.ORG REACHED 100,000 SIGNATURES

SMA DISEASE SURVEY STUDY

HAPPY 5 DECEMBER WORLD VOLUNTEERS DAY

3 DECEMBER INTERNATİONAL DAY OF PERSONS WİTH DİSABİLİTİES

CORONAVIRUS HYGIENE SUPPORT PACK

STATEMENT OF HEALTH MINISTER FAHRETTIN KOCA ON SMA TREATMENTS

MEETING NOTES ON 'CURRENT TREATMENTS FOR SMA DISEASE'

NOVEMBER 24, TEACHERS DAY

HAPPY 20 NOVEMBER INTERNATIONAL CHILDREN'S RIGHTS DAY

CALL FOR 'PRE-MARRIAGE SCREENING TEST' FROM MOTHER FIGHTING WITH SMA TO STATE

In an interview with Anadolu Agency, Deputy Chairman of the Board of Directors Ece Soyer ...

ORAL AND DENTAL HEALTH WEEK

TURN YOUR TEACHER'S DAY INTO GOOD WILL WITH YOUR CERTIFICATE DONATIONS.

WE REMEMBER MUSTAFA KEMAL ATATÜRK WITH RESPECT AND LONGİNG

SMA AWARENESS SEMINAR WAS HELD WITH BILKENT UNIVERSITY

As the Association for Combating SMA Disease, we attended the online meeting on "Works ...

THE SIGNATURE CAMPAIGN THAT WE LAUNCHED ON CHANGE.ORG REACHED 50,000 SIGNATURES

HELPSTEPS STEPS TAKEN FOR SMA-DER TURN INTO HELP FOR IZMIR.

ATTENTION OF OUR FAMILIES WHO NEED MEDICAL AND CONSUMABLE MATERIALS DUE TO EARTHQUAKE

HAPPY REPUBLIC HOLIDAY

I AM AWARE OF SMA PROJECT OPENING MEETING

OUR EUROPEAN UNION PROJECT "LET'S KEEP LIFE TOGETHER" IS APPROVED

AWARE OF SMA ONLINE PROJECT MEETING WAS HELD.

FREE INDIVIDUAL NUTRITION CONSULTANCY FOR SMA PATIENTS

CHANGE.ORG CAMPAIGN FOR SMA PATIENTS

SMA-DER Vice Chairman, Ece Soyer Demir is the guest of Aylin Kontente Kul to answer SMA ...

OUR STATIONERY PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

The online seminars organized by the SMA Disease Fighting Association continue with the ...

Ece Soyer Demir, Chairman of the Board of SMA-DER, gave an interview to the 'Social ...

OUR MEDICAL SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

FREE ONLINE GROUP CONSULTANCY FOR SMA PATIENTS AND RELATIVES

ASSOC.PROF. DR. OMER KILIÇ'S EXPLANATION ABOUT INFLUENZA (FLU) VACCINE

You can support the SMA Disease Fighting Association on the HelpSteps right-sense ...

REQUEST FORM FOR STATIONERY GIFT

Our Vice Chairman of the Board of Directors, Ece Soyer Demir made an interview with 'BBC ...

OUR MEETING WITH SSI PRESIDENT, İSMAİL YILMAZ ABOUT CURRENT DEVELOPMENTS

The online seminars to be organized by the SMA Disease Fight Association within the scope ...

The online seminars to be organized by the SMA Disease Fight Association within the scope ...

MEDICAL SUPPORT PACKAGE REQUEST FORM

SUT WHICH ALLOWS SMA TYPE 2-3 PATIENTS ACCESS THE DRUG NAMED SPINRAZA HAS BEEN CHANGED

AWARENESS SEMINAR WITH TURKISH MEDICAL ASSOCIATION STUDENT BRANCHES

The online seminars to be organized by the SMA Disease Fight Association as part of ...

The online seminars series to be organized by the SMA Disease Fight Association within ...

ONLINE LIVE BROADCAST ON "LIVE WITH SMA" WITH ESRA TEYMUR ŞİMŞEK

The online seminars to be organized by the SMA Disease Fight Association as part of the ...

The online seminars to be organized by the SMA Disease Fight Association as part of ...

WITH PROF. DR. KÜRŞAT BORA ÇARMAN, ONLINE BROADCAST ON "SMA IN ALL ASPECTS"

ONLINE SEMINAR CALENDAR

AUGUST SMA AWARENESS MONTH EVENTS START

LET YOUR SACRIFICE DONATIONS COME TO SMA PATIENTS!

SMA DISEASE FROM A MOTHER'S EYE-NAZLI DEMIR

SMA-DER STEP BY STEP

AWARE OF SMA PROJECT SUCCESSFULLY PASSED THE FINAL EVALUATION

ATTENTION OF OUR FAMILIES WHO NEED MEDICAL AND CONSUMABLE MATERIALS DUE TO EARTHQUAKE

"SMA-DER ON OPEN PLATFORM"

EXPLANATION FROM THE MINISTER SELÇUK ABOUT THE EXPIRED REPORTS

PRIVATE EDUCATION AND REHABILITATION CENTERS OPEN ON JUNE 15, 2020

GENE THERAPY APPROVED BY ZONGENSMA EUROPEAN COMMISSION

UNITED NATIONS CHILDREN'S RIGHTS AGREEMENT TURKEY REPORT

THANKS FROM RADICHAL FAMILY TO SMA-DER

COVID 19 DISABLED MAP

HAPPY NURSES DAY

SURVEY OF HEALTH EXPENDITURES FROM THE POCKET BY INDIVIDUALS WITH RARE DISEASES

OUR FOOD SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

UNITED NATIONS CHILDREN'S RIGHTS AGREEMENT TURKEY REPORT

FOOD SUPPORT PACKAGE REQUEST FORM

LET YOUR RAMADAN DONATIONS COME TO SMA PATIENTS!

OUR FAMILY SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS

DO NOT FORGET TO FOLLOW US ON OUR SOCIAL MEDIA ACCOUNTS!

23 APRIL NATIONAL SOVEREIGNTY AND CHILDREN'S DAY

Online seminars organized by SMA-DER continue with April 23 National Sovereignty and ...

Online seminars organized by SMA-DER continue with the participation of Health Services ...

Online seminars organized by SMA-DER continue with the participation of psychologist ...

SMA PATIENT, 17-MONTHS BABY RECOVERED FROM COVID-19

Online seminars organized by SMA-DER continues with the participation of Prof. Dr. ...

The first of the online seminars to be organized by SMA-DER begins with the ...

SMA-DER ONLINE SEMINARS BEGIN

7 APRIL, WORLD HEALTH DAY

You can send your questions about the SMA and Covid-19 outbreak to Prof. Dr. Kürşat ...

WHAT ARE FAMILY MEASURES THAT CAN BE TAKEN TO PROTECT PATIENTS FROM THE RISK OF ...

HAPPY 105th YEAR OF ÇANAKKALE VICTORY

RECOMMENDATIONS FOR SMA PATIENTS UNDER COVID-19

ATTENTION OF PATIENTS AND PATIENTS' RELATIVES

HAPPY 14 MARCH DOCTOR'S DAY

CONCERNS ABOUT SMA AND COVID-19

WORLD IS BETTER WITH WOMEN'S LABOR

RARE DISEASES DAY ACTIVITIES

PSYCHODRAM LIVING GROUP FOR INDIVIDUALS WITH DISABLED SISTERS

ATTENTION OF OUR FAMILIES WHO NEED MEDICAL AND CONSUMABLE MATERIALS DUE TO EARTHQUAKE

PATIENT DIAPER REQUEST FORM

A RESEARCH REPORT OF ALS, SMA, DMD, MS AND RARE DISEASES IS PUBLISHED BY TMMM.

WE WISH YOU HAPPY, PEACEFUL AND HEALTHY YEARS ...

RARE DISEASES NETWORK GATHERING MEETING

EXPLANATION OF THE AVEXIS COMPANY ON THE DRUG NAMED AVXS-101

FREQUENTLY ASKED QUESTIONS ABOUT THE FREE SMA CARRIER SCREEN

ECE SOYER DEMİR WILL BE THE GUEST OF THE "RIGHT OF SPEECH" PROGRAM

SMA AWARENESS ACTIVITY 2 FOR HEALTHCARE WORKERS

SMA AWARENESS ACTIVITY FOR HEALTHCARE WORKERS

ASSOC.PROF. DR. İBRAHİM GÜLHAN'S VIEWS ABOUT RARE DISEASES POLICIES

NO VIOLENCE IN HEALTH !!!

FREE SMA CARRIER SCAN

ORAL AND DENTAL HEALTH WEEK

RARE DISEASES - SMA SEMINAR

ALL CHILDREN HAVE THE RIGHT TO GET EDUCATION

REGULATION REGARDING FOREIGN DRUG ELECTRONIC RECIPE AND ELECTRONIC REPORT APPLICATION

FDA GIVES PRIORITY REVIEW ON THE DRUG NAMED "RISDIPLAM"

FREE SMA CARRIER TEST UNTIL 1 JANUARY 2020

EXAMPLE OF SUCCESS OF BEKIR BALKAN ALBAY

In our meetings with the Ministry of National Education officials and at the meeting of ...

8 SEPTEMBER WORLD THERAPISTS DAY

30TH OF AUGUST VICTORY DAY

MESSAGE FOR 2018-2019 ACADEMIC YEAR

DONOR RIGHTS DECLARATION

"I AM SMA" FILM SCREENING

ZOLGENSMA APPROVED BY FDA

THE WINNERS OF THE PAINTING COMPETITION '' LIVING WITH SMA DISEASE '' ARE ANNOUNCED

OUR 'EURORDIS RARE DIASES EUROPE' MEMBERSHIP

OUR TREAT-NMD MEMBERSHIP

DAY OF RARE DISEASES PHOTO EXHIBITION

MEDICINE COSTS FOR SMA TYPE 2 AND TYPE 3 PATIENTS ARE INCLUDED IN REFUND

PAINTING CONTEST THEMED "LIVING WITH SMA DISEASE"

YOU ARE INVITED TO OUR SMA AWARENESS EXHIBITION IN ESPARK

MADDE 1 – 24/3/2013 tarihli ve 28597 sayılı Resmî Gazete’de ...

SMA PATIENTS ARE TREATED AT ESOGÜ

HOPEFUL DAYS ARE COMING FOR SMA PATIENT ÇAĞAN MERİÇ

ASSOCIATION LAUNCH AND PHOTO EXHIBITION

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