22.08.2022
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Dear Participants;

 

As the SMA Disease Fighting Association, we have organized various training programs and events for 5 years. The first of which we will organize this year is Prof. Dr. It is a great pleasure to announce to you the 1st National SMA Camp, which will be held in Eskişehir between 7-10 September 2022 under the consultancy of Kürşat Bora Çarman.

 

The continuous development of the healthcare field reveals the need for continuous education of patient relatives and other caregivers. We have prepared a comprehensive program for you, where all participants can increase their knowledge and skills and add value to themselves in the field of SMA. We will introduce you to various sessions. While we refresh our knowledge with the support of our experts; In the family workshop to be held, we will express the problems we experience and solution suggestions on many issues, from the social field to the health field, from the field of education to the free press.

 

When parents are at educational seminars; We have prepared workshops consisting of games, painting, design, story writing and creative drama activities for children and young people. Our little participants will become aware of their own strength while listening to the success stories of SMA patients; They will make new friendships during fun activities. (Parent and child lounges are adjacent to each other and are accessible to the disabled.)

 

To strengthen the bonds between patient families and to have a fun time, Sazova Park, Fairy Tales are included within the camp program. We organized a tour program consisting of the Castle, Science and Experiment Center, Zoo, Sabancı Space House, Eti Underwater World, Esminyatürk.

 

Scientific, current and We would be pleased to see you among us in our camp program, where we will not only increase our knowledge with its educational content, but also have fun with its social content. font-size: 10pt;">Accommodation and transportation will be covered by the Association to Fight SMA Disease. font-size: 10pt;">The restaurant, rooms, elevator, lobby area, parking lot and sightseeing areas within the hotel are all suitable for disabled access. style="color: #ff0000; font-size: 10pt;">1. National SMA Camp will be held at Eskişehir Park Dedeman Hotel between 7-10 September 2022. style="color: #ff0000; font-size: 10pt;">Detailed program calendar Thursday, August 25, 2022 It will be announced.

 

1. To apply for the National SMA Camp, please click. style="font-size: 12pt; color: #ff0000;">CRITERIA

 

-Priority for the camp will be given to type 2 and type 3 patients.

 

-Number balance will be observed between girls and boys.

 

-Children who can be alone and participate in activities and Priority will be given to young people.

 

-6-18 age group is prioritized. Participating patients from other age groups will be selected if there is sufficient quota.

 

-Unfortunately, type 1 patients will not be included in the 1st National SMA Camp, which we will organize for the first time this year. We are planning a more comprehensive program for patients receiving respiratory support in the coming years. Thank you for your understanding. We would be happy to see you among us next year by increasing the number of our participants.

 

EDUCATION TOPICS

Very Directive for SMA Disease Overview

Physical Therapy Applications in SMA Patients

Orthopedic Approach in SMA Patients

Nutrition in SMA Patients

SMA Genetics and PGT

Life with SMA Diagnosis: Psychological Psychology of Families Processes

Rights in Case of SMA Disease

Family Workshop WORKSHOPS 

Story Writing Workshop with Sabancı Foundation

Creative Drama Workshop

Success Stories in SMA Disease

Fairy Tale Workshop

Magic Colors Workshop

Art and Design Workshop

Game Workshop

Eskişehir Trip

 

TRAVEL AND SOCIAL ACTIVITY

Sazova Park

Fairy Tale Castle

Science and Experiment Center

Zoo

Sabancı Space House

Eti Underwater World

Esminyatürk

 

FREQUENTLY ASKED QUESTIONS

 

  • Between which dates and in which city will the National SMA Camp be held?

 

1. National SMA Camp will be organized by the Association to Fight SMA Disease between 7-10 September 2022 at Eskişehir Park Dedeman Hotel.

 

  • Escape to SMA Camp&cced; Can we get people to participate?

 

Within the nuclear family; patient, mother and father If there are siblings, they can participate. Apart from this, accommodation and transportation support cannot be provided for people in the extended family such as uncles, cousins, etc.

  Is it suitable for disabled access?

Yes. Both the hotel and all the areas to visit have been confirmed for you beforehand. All areas of the hotel such as the restaurant, rooms, elevator, lobby area and parking lot are accessible to the disabled. There are disabled toilets within the hotel. All the areas to be visited are: It is suitable for disabled access.

 

  • Is it compulsory to attend training?

 

It is mandatory to attend all trainings.

 

  • Will the transportation fee be covered if I use my own vehicle?

 

Yes. If the necessary documents are submitted to us completely, the transportation fee will be covered. However, in case of incomplete documents, the fee will not be covered. 

 

  • According to what criteria will the participants be selected?

 

-Priority for the camp will be given to type 2 and type 3 patients.

 

-Number balance will be observed between girls and boys.

 

-Priority will be given to children and young people who can be alone and participate in activities.

 

-6-18 age group is prioritized. Participating patients from other age groups will be selected if there is sufficient quota.

 

-Unfortunately, type 1 patients will not be included in the 1st National SMA Camp, which we will organize for the first time this year. We are planning a more comprehensive program for patients receiving respiratory support in the coming years. Thank you for your understanding. We would be happy to see you among us next year by increasing the number of participants.

 

  • When will the participant list be announced?

 

Participant list Monday, August 29, 2022ü It will be announced. Those who are eligible to participate will be informed by phone.

 

  • What is the application deadline?

The deadline for applications is Friday, August 26, 2022. It is 17.00. Applications made after this date will not be evaluated.

 

  • On Wednesday, 7 September. What is the earliest time we can check into the accommodation hotel?

 

Wednesday, September 7th You can check in for accommodation at 14.00 at the earliest.

 

  • 10 September Saturday day from the hotel at the latest; What time can we leave?

 

On Saturday, September 10th; at the latest You can check out at 12.00. 

 

  • Trip Is participation in the programs mandatory?

 

Yes, participation in the travel programs is mandatory.