WE HAD A MEETING WITH MR. PROF.DR.GÖKHAN TUNA ÖZTÜRK, GENERAL MANAGER OF SOCIAL SECURITY INSTITUTION GSS.

Social Security Institution GSS General Managerü Dear Prof. Dr. Interview with Gökhan Tuna & Oztürk Our institutional visits to contribute to the regulations continue.
In this context; We held an official meeting in Ankara regarding the issues we are following within the scope of the problems and expectations experienced by SMA patients.

Prof. Dr. During our visit to Gökhan Tuna & Oztürk, we had questions about the disruptions in the supply process of Spinraza used in the treatment of SMA, the process of including Risdiplam and Zolgensma within the scope of reimbursement, and the benefit of all patients from the treatment. We conveyed our opinions and suggestions on current issues. We also provided information about the activities we carry out as the Turkish SMA Foundation.

Deputy Chairman of the Board of Directors Ece Soyer Demir, representing our foundation, attended the meeting. Mehmet Demir, Secretary General of the Board of Directors, Social Supports Coordinator; Nazlı Demir, Patient Relations Coordinator Esra Ayvalı and Corporate Communications Coordinatorö İlkay Eldemir attended.  

We would like to thank them for their interest and evaluation.