FAMILY INFORMATION BOOK

SMA Family Information Book

Patients and their relatives diagnosed with SMA need to be supported with scientific information, depending on the developments in the field of health, during the difficult treatment process that awaits them. In this context, we prepared the "Family Information Book" with the support of experts in order to create a safe, scientific open source where people diagnosed with SMA carrier screening or newborn screening can easily access accurate information.

Prof. Dr. This book, prepared under the editorship of Kürşat Bora Arman; It is the first Turkish source that covers all aspects of SMA disease. With the Family Information Book, we aim to improve the quality of life of patients by providing information about the disease, proper care and current developments. In the success of the treatment of the disease, it is of great importance to have knowledge about general health conditions, nutrition, swallowing, lung functions, vaccines and physiotherapy principles as well as medications. Detailed information and instructions on all these topics are presented in the book, along with their visuals.

  The book was prepared to be a guide for people to access current and scientific information. You can get it for free by filling out the form on the link below.

CLICK TO FILL OUT THE FORM.