Patients' relatives, who are racing against time in the fight against SMA disease, find it promising that the criteria are expanded and a more accessible treatment is offered, and the process initiated regarding Evrysdi (Risdiplam) and Zolgensma (Onasemnogene abeparvovec-xioi) treatment should be implemented as soon as possible in favor of the patients. We would like to state that it is waiting for the outcome.
As Turkey SMA Foundation; While we continue our efforts to ensure that patients benefit from all treatment methods equally and free of charge, we will continue to closely follow the process in which the urgent regulation of laws and practices is critical for patients to hold on to life.