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24.04.2020
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We are grateful to all healthcare professionals who worked devotedly in this difficult period.

ANNOUNCEMENTS
19
ocak
11
ocak
08
ocak
07
ocak
31
aralık
28
aralık
23
aralık
HEALTH MINISTER FAHRETTIN KOCA ANNOUNCED THAT THE PRE-MARITAL SMA SCREENING STARTED TODAY
18
aralık
HYGIENE SUPPORT PACKAGE REQUEST FORM
07
aralık
SUPPORT FOR PRE-MARITAL SCREENING FROM FAMILIES STRUGGLING WITH SMA
05
aralık
HAPPY WORLD VOLUNTEERS DAY ON DECEMBER 5
03
aralık
DECEMBER 3 IS WORLD DAY OF DISABLED PEOPLE
02
aralık
Health Minister Fahrettin Koca made the announcement after a meeting of the SMA ...
01
aralık
MAY YOUR GIFT TURN INTO A FAVOR FOR SMA PATIENTS WITH OUR NEW YEAR CERTIFICATES
26
kasım
Minister of Health Fahrettin Koca's Statements about SMA Disease in the Parliament's Plan ...
23
kasım
NOVEMBER 24, TEACHER'S DAY
16
kasım
CHARGED ASPIRATION DEVICE REQUEST FORM
11
kasım
LET YOUR TEACHER'S DAY GIFT TURN INTO A FAVOR WITH OUR CERTIFICATE DONATIONS
10
kasım
WE COMMEMORATE THE GREAT LEADER GAZI MUSTAFA KEMAL ATATÜRK WITH RESPECT
05
kasım
PULSE OXIMETER ASSISTANCE APPLICATION FORM
29
ekim
HAPPY REPUBLIC DAY!
19
ekim
GIFT OF CLOTHES APPLICATION FORM
12
ekim
THE SEPTEMBER E-BULLETIN OF THE SOCIETY FOR THE FIGHT AGAINST SMA DISEASE IS ON THE AIR
06
ekim
THE MINISTRY OF HEALTH WILL PROVIDE FREE SMA SCREENING TO MARRIED COUPLES
05
ekim
ANNOUNCEMENT ABOUT THE TREATMENTS OF SMA PATIENTS
18
eylül
OUR ELECTRICITY BILL SUPPORT FOR SMA PATIENTS CONNECTED TO A RESPIRATOR HAS STARTED
08
eylül
HAPPY WORLD PHYSIOTHERAPISTS DAY ON SEPTEMBER 8
03
eylül
The Covid-19 virus that has entered our lives affects the world; individuals with chronic ...
02
eylül
AUGUST E-NEWSLETTER IS PUBLISHED
30
ağustos
HAPPY 30 AUGUST VICTORY DAY !
28
ağustos
OUR STATIONERY GIFTS ARE ON THEIR WAY TO BE DELIVERED TO STUDENTS SUFFERING FROM SMA
28
ağustos
25
ağustos
An online meeting was organized with the participation of project partners within the ...
24
ağustos
STATIONERY GIFT APPLICATION FORM
24
ağustos
DISASTER AND EMERGENCY PREPARATORY SURVEY
13
ağustos
SMA AWARENESS MONTH
12
ağustos
12
ağustos
THE PGD METHOD WAS COVERED BY THE SGK REFUND
30
temmuz
WE CONVEY OUR BEST WISHES
29
temmuz
CORONAVIRUS HYGIENE SUPPORT PACKAGE REQUEST FORM
15
temmuz
OUR MARKET CARDS ARE READY BEFORE EID AL-ADHA
07
temmuz
LET YOUR SACRIFICE DONATIONS COME TO SMA PATIENTS!
07
temmuz
HAPPY FATHER’S DAY!
16
haziran
HOW CAN I ACCESS THE SMA INFORMATION GUIDE FOR FAMILIES?
16
haziran
SMA INFORMATION GUIDE FOR FAMILIES PUBLISHED
11
haziran
WHAT’S IN THE SMA INFORMATION GUIDE FOR FAMILIES?
01
haziran
SMA INFORMATION GUIDE FOR FAMILIES WILL BE SOON PUBLISHED
20
mayıs
HAPPY MAY 19th COMMEMORATION OF ATATÜRK AND NATIONAL YOUTH AND SPORTS DAY
20
mayıs
HAPPY RAMADAN HOLIDAYS!
12
mayıs
HAPPY NURSES DAY!
12
mayıs
HAPPY MOTHER’S DAY!
12
mayıs
ONLINE SMA MEETING
04
mayıs
HAPPY LABOUR DAY!
04
mayıs
LET YOUR MOTHER'S DAY GIFT GIVE HOPE TO SMA PATIENTS
27
nisan
OUR RAMADAN SUPPORT PACKAGES ARE READY
23
nisan
ONLINE SMA CHILDREN'S MEETING
23
nisan
ONLINE SMA CHILDREN'S MEETING
23
nisan
APPLICATION DEADLINE FOR ONLINE SMA MEETING IS APRIL 18
23
nisan
THE DURATION OF DISABLED REPORTS EXTENDED
23
nisan
23 APRIL NATIONAL SOVEREIGNTY AND CHILDREN'S DAY
15
nisan
13
nisan
"I AM AWARE OF SMA" PROJECT WORK CONTINUES WITH 'SMA NEEDS ANALYSIS MEETING
13
nisan
"I AM AWARE OF SMA" PROJECT WORK CONTINUES WITH 'ONLINE CHILDREN'S MEETING'
12
nisan
RAMADAN SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS
07
nisan
7 APRIL, WORLD HEALTH DAY
06
nisan
LET YOUR RAMADAN DONATIONS COME TO SMA PATIENTS!
31
mart
RISDIPLAM APPROVED BY EMA
29
mart
OUR RAMADAN SUPPORT PACKAGES ARE READY
29
mart
SMA PATIENTS OVER 18 YEARS ARE AMONG THE PRIORITY GROUPS FOR COVID-19 VACCINATION
25
mart
THE NUMBER OF SMA NUSINERSEN SODIUM APPLICATION CENTERS INCREASED
24
mart
ONLINE MEETING OF  ASSOCIATIONS
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mart
OUR HOSPITAL COTS AND BED AIDS ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS
18
mart
Disability health board reports and information about special needs report for ...
16
mart
FREE INDIVIDUAL NUTRITION COUNSELING FOR SMA PATIENTS
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mart
HAPPY MARCH 14 MEDICAL DAY TO ALL HEALTH WORKERS
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mart
HOSPITAL COT REQUEST FORM
12
mart
CHARGED ASPIRATION DEVICE REQUEST FORM
11
mart
In the meeting a presentation about the general characteristics of devices that are used ...
10
mart
HEALTH EXPENDITURES MADE BY FAMILIES WITH RARE DISEASES
09
mart
HAPPY 8 MARCH INTERNATIONAL WOMEN'S DAY
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mart
With 8 March International Women's Day certificates, you can contribute to the medical ...
27
şubat
RARE DISEASES DAY ONLINE PRESS CONFERENCE
27
şubat
A protocol was signed between Ankara Metropolitan Municipality and Başkent University for ...
24
şubat
OUR DIAPER SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS
15
şubat
CALL FOR ORDINARY GENERAL ASSEMBLY MEETING
06
şubat
The meeting meeting with the local stakeholders of our Erasmus + project called "Let's ...
04
şubat
PATIENT DIAPER SUPPORT PACK REQUEST FORM
01
şubat
OUR CHARGED ASPIRATION DEVICE SUPPORT PACKAGES ARE ON THE ROAD TO DELIVER OUR PATIENTS
30
ocak
Our Vice Chairman of the Board of Directors, Ece Soyer Demir; He is the guest of This ...
28
ocak
SMA FIGHTING ASSOCIATION IS NOW IN TRENDYOL
12
ocak
Awareness in solution conference was held with Acıbadem University Engineering ...
04
ocak
CHARGED ASPIRATION DEVICE REQUEST FORM
12
ocak
Ece Soyer Demir, Vice Chairman of the Board of SMA-DER; SMA Disease is the guest of ...
31
aralık
HAPPY NEW YEAR
25
aralık
ONLINE BROADCAST ON 'LIVING WITH SMA' WITH MURADİYE ROTARY CLUB
24
aralık
ZOLGENSMA TITCK IS ADDED TO THE ABROAD DRUG LIST
22
aralık
ASPIRATION PROBE SUPPORT PACK REQUEST FORM-ASPİRASYON SONDASI
21
aralık
LIVE BROADCAST ON 'LIVE WITH SMA' WITH ŞİŞLİ ROTARACT CLUB
19
aralık
OUR CORONAVIRUS HYGIENE SUPPORT PACKAGES ARE ON THE ROAD TO REACH OUR PATIENTS
13
aralık
In the new year, choose our "New Year Donation Certificate" for your loved ones, and your ...
11
aralık
SMA IS A PREVENTABLE DISEASE
11
aralık
THE SIGNATURE CAMPAIGN THAT WE LAUNCHED ON CHANGE.ORG REACHED 100,000 SIGNATURES
08
aralık
SMA DISEASE SURVEY STUDY
05
aralık
HAPPY 5 DECEMBER WORLD VOLUNTEERS DAY
03
aralık
3 DECEMBER INTERNATİONAL DAY OF PERSONS WİTH DİSABİLİTİES
29
kasım
CORONAVIRUS HYGIENE SUPPORT PACK
28
kasım
STATEMENT OF HEALTH MINISTER FAHRETTIN KOCA ON SMA TREATMENTS
28
kasım
MEETING NOTES ON 'CURRENT TREATMENTS FOR SMA DISEASE'
23
kasım
NOVEMBER 24, TEACHERS DAY
20
kasım
HAPPY 20 NOVEMBER INTERNATIONAL CHILDREN'S RIGHTS DAY
19
kasım
CALL FOR 'PRE-MARRIAGE SCREENING TEST' FROM MOTHER FIGHTING WITH SMA TO STATE
17
kasım
In an interview with Anadolu Agency, Deputy Chairman of the Board of Directors Ece Soyer ...
17
kasım
ORAL AND DENTAL HEALTH WEEK
13
kasım
TURN YOUR TEACHER'S DAY INTO GOOD WILL WITH YOUR CERTIFICATE DONATIONS.
09
kasım
WE REMEMBER MUSTAFA KEMAL ATATÜRK WITH RESPECT AND LONGİNG
28
temmuz
SMA AWARENESS SEMINAR WAS HELD WITH BILKENT UNIVERSITY
28
temmuz
As the Association for Combating SMA Disease, we attended the online meeting on "Works ...
06
kasım
THE SIGNATURE CAMPAIGN THAT WE LAUNCHED ON CHANGE.ORG REACHED 50,000 SIGNATURES
31
ekim
HELPSTEPS STEPS TAKEN FOR SMA-DER TURN INTO HELP FOR IZMIR.
30
ekim
ATTENTION OF OUR FAMILIES WHO NEED MEDICAL AND CONSUMABLE MATERIALS DUE TO EARTHQUAKE
28
ekim
HAPPY REPUBLIC HOLIDAY
25
ekim
I AM AWARE OF SMA PROJECT OPENING MEETING
21
ekim
OUR EUROPEAN UNION PROJECT "LET'S KEEP LIFE TOGETHER" IS APPROVED
20
ekim
AWARE OF SMA ONLINE PROJECT MEETING WAS HELD.
28
temmuz
18
ekim
FREE INDIVIDUAL NUTRITION CONSULTANCY FOR SMA PATIENTS
14
ekim
CHANGE.ORG CAMPAIGN FOR SMA PATIENTS
13
ekim
SMA-DER Vice Chairman, Ece Soyer Demir is the guest of Aylin Kontente Kul to answer SMA ...
10
ekim
OUR STATIONERY PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS
05
ekim
The online seminars organized by the SMA Disease Fighting Association continue with the ...
03
ekim
Ece Soyer Demir, Chairman of the Board of SMA-DER, gave an interview to the 'Social ...
30
eylül
OUR MEDICAL SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS
29
eylül
FREE ONLINE GROUP CONSULTANCY FOR SMA PATIENTS AND RELATIVES
28
eylül
ASSOC.PROF. DR. OMER KILIÇ'S EXPLANATION ABOUT INFLUENZA (FLU) VACCINE
26
eylül
You can support the SMA Disease Fighting Association on the HelpSteps right-sense ...
22
eylül
REQUEST FORM FOR STATIONERY GIFT
14
eylül
Our Vice Chairman of the Board of Directors, Ece Soyer Demir made an interview with 'BBC ...
05
eylül
OUR MEETING WITH SSI PRESIDENT, İSMAİL YILMAZ ABOUT CURRENT DEVELOPMENTS
31
ağustos
The online seminars to be organized by the SMA Disease Fight Association within the scope ...
26
ağustos
The online seminars to be organized by the SMA Disease Fight Association within the scope ...
22
ağustos
MEDICAL SUPPORT PACKAGE REQUEST FORM
22
ağustos
SUT WHICH ALLOWS SMA TYPE 2-3 PATIENTS ACCESS THE DRUG NAMED SPINRAZA HAS BEEN CHANGED
21
ağustos
AWARENESS SEMINAR WITH TURKISH MEDICAL ASSOCIATION STUDENT BRANCHES
21
ağustos
The online seminars to be organized by the SMA Disease Fight Association as part of ...
21
ağustos
The online seminars series to be organized by the SMA Disease Fight Association within ...
21
ağustos
ONLINE LIVE BROADCAST ON "LIVE WITH SMA" WITH ESRA TEYMUR ŞİMŞEK
21
ağustos
The online seminars to be organized by the SMA Disease Fight Association as part of the ...
21
ağustos
The online seminars to be organized by the SMA Disease Fight Association as part of ...
21
ağustos
WITH PROF. DR. KÜRŞAT BORA ÇARMAN, ONLINE BROADCAST ON "SMA IN ALL ASPECTS"
21
ağustos
ONLINE SEMINAR CALENDAR
18
ağustos
AUGUST SMA AWARENESS MONTH EVENTS START
16
temmuz
LET YOUR SACRIFICE DONATIONS COME TO SMA PATIENTS!
28
temmuz
28
haziran
SMA DISEASE FROM A MOTHER'S EYE-NAZLI DEMIR
27
haziran
SMA-DER STEP BY STEP
26
haziran
AWARE OF SMA PROJECT SUCCESSFULLY PASSED THE FINAL EVALUATION
14
haziran
ATTENTION OF OUR FAMILIES WHO NEED MEDICAL AND CONSUMABLE MATERIALS DUE TO EARTHQUAKE
13
haziran
"SMA-DER ON OPEN PLATFORM"
10
haziran
"MY SMA STORY"
03
haziran
EXPLANATION FROM THE MINISTER SELÇUK ABOUT THE EXPIRED REPORTS
01
haziran
PRIVATE EDUCATION AND REHABILITATION CENTERS OPEN ON JUNE 15, 2020
20
mayıs
GENE THERAPY APPROVED BY ZONGENSMA EUROPEAN COMMISSION
18
mayıs
UNITED NATIONS CHILDREN'S RIGHTS AGREEMENT TURKEY REPORT
18
mayıs
THANKS FROM RADICHAL FAMILY TO SMA-DER
18
mayıs
COVID 19 DISABLED MAP
18
mayıs
HAPPY NURSES DAY
18
mayıs
SURVEY OF HEALTH EXPENDITURES FROM THE POCKET BY INDIVIDUALS WITH RARE DISEASES
16
mayıs
OUR FOOD SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS
13
mayıs
UNITED NATIONS CHILDREN'S RIGHTS AGREEMENT TURKEY REPORT
07
mayıs
FOOD SUPPORT PACKAGE REQUEST FORM
05
mayıs
LET YOUR RAMADAN DONATIONS COME TO SMA PATIENTS!
05
mayıs
OUR FAMILY SUPPORT PACKAGES ARE ON THE ROAD TO BE DELIVERED TO OUR PATIENTS
05
mayıs
DO NOT FORGET TO FOLLOW US ON OUR SOCIAL MEDIA ACCOUNTS!
24
nisan
23 APRIL NATIONAL SOVEREIGNTY AND CHILDREN'S DAY
24
nisan
Online seminars organized by SMA-DER continue with April 23 National Sovereignty and ...
24
nisan
Online seminars organized by SMA-DER continue with the participation of Health Services ...
24
nisan
Online seminars organized by SMA-DER continue with the participation of psychologist ...
24
nisan
SMA PATIENT, 17-MONTHS BABY RECOVERED FROM COVID-19
24
nisan
Online seminars organized by SMA-DER continues with the participation of Prof. Dr. ...
24
nisan
The first of the online seminars to be organized by SMA-DER  begins with the ...
24
nisan
SMA-DER ONLINE SEMINARS BEGIN
24
nisan
7 APRIL, WORLD HEALTH DAY
24
nisan
You can send your questions about the SMA and Covid-19 outbreak to Prof. Dr. Kürşat ...
24
nisan
WHAT ARE FAMILY MEASURES THAT CAN BE TAKEN TO PROTECT PATIENTS FROM THE RISK OF ...
24
nisan
HAPPY 105th YEAR OF ÇANAKKALE VICTORY
24
nisan
RECOMMENDATIONS FOR SMA PATIENTS UNDER COVID-19
24
nisan
ATTENTION OF PATIENTS AND PATIENTS' RELATIVES
24
nisan
HAPPY 14 MARCH DOCTOR'S DAY
24
nisan
CONCERNS ABOUT SMA AND COVID-19
24
nisan
WORLD IS BETTER WITH WOMEN'S LABOR
24
nisan
RARE DISEASES DAY ACTIVITIES
24
nisan
PSYCHODRAM LIVING GROUP FOR INDIVIDUALS WITH DISABLED SISTERS
24
nisan
ATTENTION OF OUR FAMILIES WHO NEED MEDICAL AND CONSUMABLE MATERIALS DUE TO EARTHQUAKE
21
nisan
PATIENT DIAPER REQUEST FORM
28
temmuz
17
nisan
A RESEARCH REPORT OF ALS, SMA, DMD, MS AND RARE DISEASES IS PUBLISHED BY TMMM.
28
temmuz
28
temmuz
28
temmuz
28
temmuz
09
ocak
WE WISH YOU HAPPY, PEACEFUL AND HEALTHY YEARS ...
09
ocak
RARE DISEASES NETWORK GATHERING MEETING
09
ocak
EXPLANATION OF THE AVEXIS COMPANY ON THE DRUG NAMED AVXS-101
09
ocak
FREQUENTLY ASKED QUESTIONS ABOUT THE FREE SMA CARRIER SCREEN
09
ocak
ECE SOYER DEMİR WILL BE THE GUEST OF THE "RIGHT OF SPEECH" PROGRAM
09
ocak
SMA AWARENESS ACTIVITY 2 FOR HEALTHCARE WORKERS
28
temmuz
04
aralık
SMA AWARENESS ACTIVITY FOR HEALTHCARE WORKERS
02
aralık
ASSOC.PROF. DR. İBRAHİM GÜLHAN'S VIEWS ABOUT RARE DISEASES POLICIES
02
aralık
NO VIOLENCE IN HEALTH !!!
02
aralık
FREE SMA CARRIER SCAN
02
aralık
ORAL AND DENTAL HEALTH WEEK
02
aralık
RARE DISEASES - SMA SEMINAR
02
aralık
ALL CHILDREN HAVE THE RIGHT TO GET EDUCATION
01
aralık
REGULATION REGARDING FOREIGN DRUG ELECTRONIC RECIPE AND ELECTRONIC REPORT APPLICATION
30
kasım
FDA GIVES PRIORITY REVIEW ON THE DRUG NAMED "RISDIPLAM"
28
temmuz
28
temmuz
28
temmuz
15
ekim
FREE SMA CARRIER TEST UNTIL 1 JANUARY 2020
28
temmuz
16
eylül
EXAMPLE OF SUCCESS OF BEKIR BALKAN ALBAY
09
eylül
In our meetings with the Ministry of National Education officials and at the meeting of ...
09
eylül
8 SEPTEMBER WORLD THERAPISTS DAY
09
eylül
30TH OF AUGUST VICTORY DAY
09
eylül
MESSAGE FOR 2018-2019 ACADEMIC YEAR
28
temmuz
28
temmuz
15
temmuz
DONOR RIGHTS DECLARATION
08
temmuz
"I AM SMA" FILM SCREENING
28
temmuz
13
haziran
ZOLGENSMA APPROVED BY FDA
17
nisan
THE WINNERS OF THE PAINTING COMPETITION '' LIVING WITH SMA DISEASE '' ARE ANNOUNCED
10
mart
OUR 'EURORDIS RARE DIASES EUROPE' MEMBERSHIP
10
mart
OUR TREAT-NMD MEMBERSHIP
08
mart
DAY OF RARE DISEASES PHOTO EXHIBITION
28
temmuz
29
temmuz
29
temmuz
29
temmuz
29
temmuz
29
temmuz
28
temmuz
28
temmuz
28
temmuz
31
ocak
MEDICINE COSTS FOR SMA TYPE 2 AND TYPE 3 PATIENTS ARE INCLUDED IN REFUND
20
ocak
PAINTING CONTEST THEMED "LIVING WITH SMA DISEASE"
29
temmuz
29
temmuz
29
temmuz
29
temmuz
29
temmuz
29
temmuz
30
temmuz
29
temmuz
30
temmuz
11
haziran
YOU ARE INVITED TO OUR SMA AWARENESS EXHIBITION IN ESPARK
30
temmuz
30
temmuz
29
temmuz
03
nisan
TITCK MEETINGS
03
nisan
MADDE 1 – 24/3/2013 tarihli ve 28597 sayılı Resmî Gazete’de ...
03
nisan
SMA PATIENTS ARE TREATED AT ESOGÜ
03
nisan
HOPEFUL DAYS ARE COMING FOR SMA PATIENT ÇAĞAN MERİÇ
21
mart
ASSOCIATION LAUNCH AND PHOTO EXHIBITION
29
temmuz
31
temmuz
30
temmuz
30
temmuz
30
temmuz
30
temmuz
30
temmuz
30
temmuz
30
temmuz
30
temmuz
28
temmuz
30
temmuz
BİZE ULAŞIN
+90 546 966 79 05
Batıkent Mahallesi Geven Sokak No: 5/B Tepebaşı/Eskişehir

: info@sma.org.tr
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