As the Turkish SMA Foundation, we attended the World Orphan Drug Congress (WODC) held on 27-29 October.

As the Turkish SMA Foundation, the World Orphan Medicine Foundation organized the World Orphan Medicine Program on 27-29 October. We attended the Congress (WODC). In this event held in the city of Amsterdam, the capital of the Netherlands, Board Members Ebru Çecdil;am and Mert Çecdil;am were present on behalf of our Foundation. supported drugs “orphan drugs” It is defined as . World Orphan Medicine, one of the most important international meetings in this field. Congress, “global strategy, advocacy and partnership” Within the scope of the titles; The needs of rare disease communities, improving access to treatments, innovative solutions and increasing cooperation between stakeholders were discussed.

As the Foundation, we aim to improve the quality of life of individuals living with SMA. We had the opportunity to share our work with international stakeholders.

We would like to thank the WODC organizers and all participants for hosting the meeting.