- Run for Goodness
- HOMEPAGE
- WHO ARE WE?
-
WHAT ARE WE DOING?
- Support Application
- Medical Device Supports
- Medical Material Supports
- "We Are With You" Boxes
- Rental Support
- Other Supports
- Stationery Supports
- Education Scholarship
- Carrier Scan
- Newborn Screening
- Nusinersen Sodium Application Centers
- PGT
- TBMM Research Commission
- Visit / Meetings
- Our Memberships
- Seminars
- SMA Awareness Month
- I SMA Movie
- Our Publications
- Projects
- HOW CAN YOU SUPPORT?
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SMA
The Rare Diseases Network was established by 9 rare disease associations, including the SMA Disease Fighting Association. Our aim is to improve the quality of life of individuals and families with rare diseases, to raise awareness in society, and to provide solutions to legislators and the health economy. Let's not forget that; we are stronger together.
