OUR ASSOCIATION OPENING

SMA disease is a fatal muscle disease that has been frequently seen in the news lately and progresses with the loss of function of the muscles in the body. The most severe type of this disease, which occurs in different types, is SMA type 1. SMA type 1 patients cannot hold their heads or move their arms and legs. They do not have basic reflexes such as sucking and swallowing. Because they cannot feed or breathe orally; They perform these two vital activities thanks to medical devices. Therefore, the lives of these babies depend on electrical devices. SMA disease; It reduces the quality of life of other types of patients. 

As individuals with SMA and their families, we believe that a drug that has received FDA and EMA approval We carried out various activities to bring it to Turkey. Since we wanted to continue on our way in a more organized way, we came together and founded the Eskişehir-based SMA Disease Fighting Association (SMA-DER).  Our aim as; Individuals born with Spinal Muscular Atrophy (SMA) disease; To provide financial and moral assistance for domestic and international diagnosis-treatment expenses, medical devices, consumables and other needs (psychological support, rehabilitation, etc.); To follow new developments and clinical research in the medical world, to ensure the active participation of individuals with SMA in social life and to carry out all kinds of activities that will benefit the society. To carry out studies to support the activity.