20.03.2023
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As We Share, We Heal We were in Izmir for a Family Meeting.

With SMA patients and their families; We held the second Family Meeting in Izmir on Saturday evening, March 18, where we came together as members of a family growing with solidarity and strengthened our fight against SMA.

Turkey SMA Foundation Chairman of the Board of Directors Ali Soyer, Deputy Chairman of the Board of Directors Ece Soyer Demir, Member of the Board of Directors Mehmet Demir, Social Supports Coordinator; 49 people attended the meeting hosted by Nazlı Demir.

In the organization where the opening speech was made by Ali Soyer, Chairman of the Board of Directors, families received information about the work of our foundation and the fight against the disease. They exchanged ideas by sharing the problems and experiences they experienced during the process.

Our meeting program, the first of which we started in Adana and continues with Izmir, will continue in different provinces.

Treatment and social rights within the scope of the program. Institutional meetings were also held for possible cooperation opportunities between our foundation and local governments in order to increase the living standards of patients within this framework.

Also, the Chairman of the Board of Directors Deputy Ece Soyer Demir attended the talk on Living with SMA at the TÜYAP Book Fair and signed her book. Thank you.