DONATION

Recent developments

RECENT DEVELOPMENTS

MEETING WITH THE UNDERSECRETARY OF THE MINISTRY OF HEALTH, PROF. DR. EYÜP GÜMÜŞ.

CORONAVIRUS HYGIENE SUPPORT PACKAGE REQUEST FORM

ACIBADEM UNIVERSITY 28 FEBRUARY WORLD RARE DISEASES DAY SYMPOSIUM

ECE SOYER DEMİR IS IN DUYGU ATAKAN'S PROGRAM ON SUPER FM

ATTENTION TO THE FAMILIES OF SMA TYPE 1 PATIENTS WHO HAVE RECEIVED DRUG APPROVAL FROM THE TURKISH PHARMACEUTICAL AND MEDICAL DEVICE AUTHORITY

AVEXIS APPLIES TO FDA FOR APPROVAL OF GENE THERAPY

MINISTER OF HEALTH DR. FAHRETTİN KOCA ANNOUNCED THAT INDIVIDUAL PATIENT APPLICATIONS OF SMA TYPE 2 AND TYPE 3 PATIENTS HAVE STARTED TO BE PROCESSED

RARE DISEASES NETWORK HAS BEEN ESTABLISHED

RARE DISEASES NETWORK IS PREPARING FOR FEBRUARY 28

PUBLIC NON-SOCIETY ORGANIZATION COOPERATION PROJECT

RARE DISEASES DAY AWARENESS EVENT FROM BURSA SAIT YILMAZ PRIMARY SCHOOL

DISABLED CHILDREN'S RIGHTS NETWORK CONFERENCE

BASKENT UNIVERSITY RARE DISEASES PANEL

RARE DISEASES NETWORK PRESS RELEASE

TOGAPT TEAM VISITS ÇAĞAN MERİÇ, ONE OF OUR SMA PATIENTS.

CAPACITY BUILDING TRAINING SESSIONS OF ESKİŞEHİR PROVINCIAL DIRECTORATE OF CIVIL SOCIETY RELATIONS

As the SMA-DER Board of Directors, we had dinner with our Minister of Health, Mr. Fahrettin Koca.

OUR VISIT TO ESKİŞEHİR PROVINCIAL HEALTH DIRECTOR ASSOC. PROF. DR. UĞUR BİLGE.

OUR VISIT TO METİN GÜLER, PRESIDENT OF THE ESKİŞEHİR CHAMBER OF COMMERCE.

PHOTOS FROM THE FEBRUARY 28 RARE DISEASES DAY PHOTO EXHIBITION.

"I AM SMA" FILM SCREENING

DISABLED CHILDREN'S RIGHTS NETWORK ANKARA MEETING

ALS, SMA, DMD, MS and Rare Diseases Research Commission Meeting

ULUSAL SOSYAL PEDİATRİ SEMPOZYUMU

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